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Mae'r wefan hon ar gael yn y Gymraeg
Dewis
Health and Wellbeing
A Health and Well-being Wales Partner

Huntington's Disease Support Group - South Wales - Family support services

Last updated: 30/09/2025
Family support services
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What we do

We are a volunteer run support group for people connected to Huntington's Disease to gather together, share information and knowledge and support each other.

Often people involved with HD can feel very isolated and that other people don't really understand what it means to have the disease, be at risk from it or care for someone with it.

We are here to help, you are not on your own.

Who do we support

Anyone connected to Huntington's Disease whether diagnosed, at risk, going through testing, family member, carer or friend.

Is there a charge to use this service?

No

Can anyone use this service?

Anyone

Service details for this family support services

Language: English medium setting

  • Can provide specialist support for families of children with disabilities / additional needs No
     
  • Relevant staff have a valid current DBS? No

 Opening times

Monthly meetings held in Cardiff usually on the last Sunday in the month - join the Facebook group for details or contact us via email. Fully accessible, plenty of parking and disabled parking.

Also general chatter in our private facebook group so you can get to know the others in the group outside of meetings.

 Accessibility

Where do we provide our service?

We will take reasonable steps to ensure the information within the website is as accurate as possible. We cannot be held responsible for the accuracy of this information. The contributors themselves maintain their own information and they welcome feedback about the accuracy of the information they provide. Those accessing it are advised to take reasonable steps to consider its content before acting upon it. This could include seeking professional or specialist advice before taking, or refraining from, any action on the basis of the information within our website.

Please note that the results found when searching in English or Welsh on the English and Welsh sides of the website (www.dewis.wales or www.dewis.cymru) will sometimes differ. Providers can (subject to rules around language standards that apply to some provision) choose to enter their information in English only, in Welsh only, or bilingually. Whilst we try to use the technology within the site to limit the impact of their choice, both terminology and the structure of the languages mean that differences in the results produced is sometimes inevitable.

We assume no responsibility for the content of websites linked on our site. Such links are provided for your information only and should not be interpreted as endorsement by us of those linked websites. We have no control over the contents of those sites or resources. We reserve the right to reject or remove links to any website if we find the site content inappropriate.

For more information please refer to the full terms and conditions.

Find more well-being information at www.dewis.wales

We will take reasonable steps to ensure the information within the website is as accurate as possible. We cannot be held responsible for the accuracy of this information. The contributors themselves maintain their own information and they welcome feedback about the accuracy of the information they provide. Those accessing it are advised to take reasonable steps to consider its content before acting upon it. This could include seeking professional or specialist advice before taking, or refraining from, any action on the basis of the information within our website.

Please note that the results found when searching in English or Welsh on the English and Welsh sides of the website (www.dewis.wales or www.dewis.cymru) will sometimes differ. Providers can (subject to rules around language standards that apply to some provision) choose to enter their information in English only, in Welsh only, or bilingually. Whilst we try to use the technology within the site to limit the impact of their choice, both terminology and the structure of the languages mean that differences in the results produced is sometimes inevitable.

We assume no responsibility for the content of websites linked on our site. Such links are provided for your information only and should not be interpreted as endorsement by us of those linked websites. We have no control over the contents of those sites or resources. We reserve the right to reject or remove links to any website if we find the site content inappropriate.

For more information please refer to the full terms and conditions.