skip to main content
Dewis

CDH UK – The Congenital Diaphragmatic Hernia Charity - Family support services

Last updated: 19/09/2025
Family support services
Leave comments/feedback for this resource

What we do

The Congenital Diaphragmatic Hernia Charity (CDH) supports anyone affected by Congenital Diaphragmatic Hernia (CDH), provides information on the condition, raises awareness, promotes and supports research & study into the cause prevention & treatment of CDH. We hold annual ‘get togethers’ to enable parents, families, friends and Clinicians to meet others in similar situations and we try to arrange these at different locations each year to offer fair geographical accessibility.

Who do we support

Anyone affected by Congenital Diaphragmatic Hernia (CDH) such as families, carers and healthcare professionals

Is there a charge to use this service?

No

Can anyone use this service?

Anyone can contact us directly

Service details for this family support services

Language: English medium setting

  • Can provide specialist support for families of children with disabilities / additional needs Yes
    Please contact to discuss your child(s) needs further.   We offer peer support for families of disabled children. We have various grant schemes for help at home with medical aids and equipment and for travel including specialist prams and wheelchairs. We also help with organising medical equipment and insurances whilst away from home.
  • Relevant staff have a valid current DBS? Yes

 Address

 You can send post here:

The Denes
Lynn Road
Tilney All Saints
PE34 4RT

Where do we provide our service?

We will take reasonable steps to ensure the information within the website is as accurate as possible. We cannot be held responsible for the accuracy of this information. The contributors themselves maintain their own information and they welcome feedback about the accuracy of the information they provide. Those accessing it are advised to take reasonable steps to consider its content before acting upon it. This could include seeking professional or specialist advice before taking, or refraining from, any action on the basis of the information within our website.

Please note that the results found when searching in English or Welsh on the English and Welsh sides of the website (www.dewis.wales or www.dewis.cymru) will sometimes differ. Providers can (subject to rules around language standards that apply to some provision) choose to enter their information in English only, in Welsh only, or bilingually. Whilst we try to use the technology within the site to limit the impact of their choice, both terminology and the structure of the languages mean that differences in the results produced is sometimes inevitable.

We assume no responsibility for the content of websites linked on our site. Such links are provided for your information only and should not be interpreted as endorsement by us of those linked websites. We have no control over the contents of those sites or resources. We reserve the right to reject or remove links to any website if we find the site content inappropriate.

For more information please refer to the full terms and conditions.

https://www.dewis.wales/ResourceDirectory/ViewResource.aspx?id=24200

Find more well-being information at www.dewis.wales

We will take reasonable steps to ensure the information within the website is as accurate as possible. We cannot be held responsible for the accuracy of this information. The contributors themselves maintain their own information and they welcome feedback about the accuracy of the information they provide. Those accessing it are advised to take reasonable steps to consider its content before acting upon it. This could include seeking professional or specialist advice before taking, or refraining from, any action on the basis of the information within our website.

Please note that the results found when searching in English or Welsh on the English and Welsh sides of the website (www.dewis.wales or www.dewis.cymru) will sometimes differ. Providers can (subject to rules around language standards that apply to some provision) choose to enter their information in English only, in Welsh only, or bilingually. Whilst we try to use the technology within the site to limit the impact of their choice, both terminology and the structure of the languages mean that differences in the results produced is sometimes inevitable.

We assume no responsibility for the content of websites linked on our site. Such links are provided for your information only and should not be interpreted as endorsement by us of those linked websites. We have no control over the contents of those sites or resources. We reserve the right to reject or remove links to any website if we find the site content inappropriate.

For more information please refer to the full terms and conditions.