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Health and Wellbeing
A Health and Well-being Wales Partner

The Ehlers-Danlos Support UK - Community Health

Last updated: 27/03/2025
Community Health
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What we do

The Ehlers-Danlos Support UK (EDS UK) was set up in 1987 to support, advise and inform those living with the Ehlers-Danlos syndromes. Over 30 years later, we are the largest UK charity that exclusively represents and supports people with all types of EDS.

We work to minimise the impact of EDS by making its diagnosis, treatment and management accessible to everyone when they need it. We provide support throughout Wales by hosting local physical and virtual support groups led by trained volunteers and 1:1 support via our freephone helpline.

We maintain a website, issue regular newsletters, and publish materials to inform the EDS community, those with a specialist interest in the condition, and the wider public. You can find your local support groups here https://www.ehlers-danlos.org/support/support-groups/wales/

Who do we support

For health professionals, patients and others

Is there a charge to use this service?

No

Can anyone use this service?

Anyone can contact us directly.

 Address

 You can send post here:

EDS UK
Devonshire House
Borehamwood
Herts
England
WD6 1QQ

 Opening times

We are are based in a small office in Borehamwood and always welcome calls from anybody touched by the the Ehlers-Danlos syndromes or from people looking to find out more about the condition or ourselves.

Staff are available 09:00 – 17:00 Monday to Friday. If you prefer to email rather than talk you can use the email addresses below.

Where do we provide our service?

We will take reasonable steps to ensure the information within the website is as accurate as possible. We cannot be held responsible for the accuracy of this information. The contributors themselves maintain their own information and they welcome feedback about the accuracy of the information they provide. Those accessing it are advised to take reasonable steps to consider its content before acting upon it. This could include seeking professional or specialist advice before taking, or refraining from, any action on the basis of the information within our website.

Please note that the results found when searching in English or Welsh on the English and Welsh sides of the website (www.dewis.wales or www.dewis.cymru) will sometimes differ. Providers can (subject to rules around language standards that apply to some provision) choose to enter their information in English only, in Welsh only, or bilingually. Whilst we try to use the technology within the site to limit the impact of their choice, both terminology and the structure of the languages mean that differences in the results produced is sometimes inevitable.

We assume no responsibility for the content of websites linked on our site. Such links are provided for your information only and should not be interpreted as endorsement by us of those linked websites. We have no control over the contents of those sites or resources. We reserve the right to reject or remove links to any website if we find the site content inappropriate.

For more information please refer to the full terms and conditions.

Find more well-being information at www.dewis.wales

We will take reasonable steps to ensure the information within the website is as accurate as possible. We cannot be held responsible for the accuracy of this information. The contributors themselves maintain their own information and they welcome feedback about the accuracy of the information they provide. Those accessing it are advised to take reasonable steps to consider its content before acting upon it. This could include seeking professional or specialist advice before taking, or refraining from, any action on the basis of the information within our website.

Please note that the results found when searching in English or Welsh on the English and Welsh sides of the website (www.dewis.wales or www.dewis.cymru) will sometimes differ. Providers can (subject to rules around language standards that apply to some provision) choose to enter their information in English only, in Welsh only, or bilingually. Whilst we try to use the technology within the site to limit the impact of their choice, both terminology and the structure of the languages mean that differences in the results produced is sometimes inevitable.

We assume no responsibility for the content of websites linked on our site. Such links are provided for your information only and should not be interpreted as endorsement by us of those linked websites. We have no control over the contents of those sites or resources. We reserve the right to reject or remove links to any website if we find the site content inappropriate.

For more information please refer to the full terms and conditions.

BESbswy